Community Engagement Resource Room
The CCTS Community Engagement (CE) Program provides the list of resources below to help community partners and Ohio State and Nationwide Children's Hospital research teams identify a place to start when it comes to engaging stakeholders in the translational research process.
The CE Program also provides consultation services and stakeholder engagement programs to help guide community stakeholders and research teams in the planning, implementation and evaluation of engaging community stakeholders in the research process.
Resources for Community Partners | Resources for Researchers
Resources for Community Partners
Health Literacy: Past, Present and Future commemorates the 2004 release and features invited presentations and discussions of the progress made in the field of health literacy since that time, explores the current state of the field and discusses possible directions for future health literacy efforts.
Ten years ago, there was a lack of recognition of health literacy as a foundational element for high-quality, patient-centered care. And there was no recognition of the importance of health literacy to improving population health. But in 2004, the Institute of Medicine released the report Health Literacy: A Prescription to End Confusion. In that same year the Agency for Healthcare Research and Quality (AHRQ) published a systematic review and analysis of evidence about the relationship between literacy and health outcomes and the effectiveness of interventions to mitigate the impact of low health literacy. Over the past decade, understanding has evolved to the point where we now understand that health literacy is not just a function of individual skills and abilities, it also includes the demands and complexities of the systems with which individuals interact.
Op-Ed piece by Michael J. Fox, actor, author and founder of the Michael J. Fox Foundation for Parkinson's Research.
Years ago, diseases like cancer and HIV/AIDS presented patients with an imminent death sentence. While there’s no doubt that receiving a diagnosis of serious illness remains a life-changer, today many patients with conditions like these can look forward to a much brighter prognosis, thanks to new and better therapies and the researchers who have dedicated their lives to developing them.
Laureen Smith, PhD, conducted a research project in Appalachian Ohio that included community-based participatory research (community participation in the research process), needs assessment, health surveys, focus groups and development of a community coalition.
Through this process, combating childhood obesity was identified as a community priority and decreasing the consumption of sugar-sweetened beverages was identified as an important target. With the help of a teen advisory council, a social marketing campaign was developed, a 30-day challenge planned and students supported in an area high school. The process was so successful, community members asked that the project be expanded to include kids of younger ages and additional high schools.
Read the full article here.
Information for people interested in volunteering for research studies. Including resources for interested volunteers about how to get involved and videos that help to answer FAQ surrounding participation in clinical research studies.
Whether it's a clinical trial of an experimental medication, a comparison of different treatments or a collection of data from people with a similar health condition or a genetic background, community participants help researchers translate scientific discovery into lifesaving care.
There are more than 85 institutions using ResearchMatch, which is an NIH sponsored volunteer registry designed to match researchers and study volunteers.
ResearchMatch is a useful tool that connects volunteers with studies (not just clinical trials).
ResearchMatch is a free and secure online tool created by academic institutions across the country who want to include you in their mission of helping studies improve health in the future. ResearchMatch works by emailing you about studies that may be a good match for you.
An online tool which serves as a central repository of research studies that are seeking volunteers at The Ohio State University.
StudySearch was created to enhance visibility and participation in research studies conducted throughout The Ohio State University and Nationwide Children's Hospital. It provides an easy way for potential study participants to find basic, descriptive information about openly recruiting research studies and trials at Ohio State and Nationwide Children's Hospital and provides them with contact information to participate.
Researchers with an IRB approved study that are currently seeking volunteers may submit a study to be listed on StudySearch.
Find cancer clinical trials at The Ohio State University Comprehensive Cancer Center- The James Cancer Hospital and Solove Research Institute (OSUCCC-James).
The OSUCCC – James has more than 500 open clinical trials at any given time, with some of the world’s latest discoveries available to clinical trial patients right here in Columbus, Ohio. In fact, patients have access to more cancer clinical trials here than at nearly any other hospital in the region, as well as access to some of the most advanced, targeted treatments and drugs available.
ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.
This curriculum is designed to provide background knowledge and skills needed for community-based participatory research, which is needed for evidence-based practices. Topics include groundwork, funding, disseminating results and sustainability.
As interest in community-based participatory research (CBPR) grows, there is a growing need and demand for educational resources that help build the knowledge and skills needed to develop and sustain effective CBPR partnerships.
A theoretical framework and practical guide for engaging partners, principles, concepts and models.
This publication was developed as part of the work of the Clinical and Translational Science Awards (CTSA) Consortium’s Community Engagement Key Function Committee Recognizing that community involvement is essential to the identification of health concerns and interventions, the Committee created a task force on updating the 1997 publication Principles of Community Engagement, published by the Centers for Disease Control and Prevention and the Agency for Toxic Substances and Disease Registry.
Non-profit organization promoting community/academic parternships; provides educational resources discussing community-based participatory research.
Established in 1997, Community-Campus Partnerships for Health (CCPH) is a nonprofit membership organization that promotes health equity and social justice through partnerships between communities and academic institutions. We view health broadly as physical, mental, emotional, social and spiritual well-being and emphasize partnership approaches to health that focus on changing the conditions and environments in which people live, work, study, pray and play.
Provides information on essential skills for building healthy communities.
The Community Tool Box is a free, online resource for those working to build healthier communities and bring about social change. It offers thousands of pages of tips and tools for taking action in communities.
Want to learn about community assessment, planning, intervention, evaluation, advocacy and other aspects of community practice? Then help yourself to over 300 educational modules and other free tools.
Under continuous development since 1994, the Community Tool Box is widely used in teaching, training and technical support. Currently available in English, Spanish and Arabic and with millions of user sessions annually, it has reached those working in over 230 countries around the world.
Free resource to help identify programs and policies to improve health and prevent disease in your community.
The Guide to Community Preventive Services (The Community Guide) is a collection of evidence-based findings of the Community Preventive Services Task Force (Task Force). It is a resource to help you select interventions to improve health and prevent disease in your state, community, community organization, business, healthcare organization or school.
Community Guide reviews are designed to answer three questions:
- What has worked for others and how well?
- What might this intervention approach cost, and what am I likely to achieve through my investment?
- What are the evidence gaps?
Free access to CDC-authored publications, including peer-reviewed journal articles, guidelines, recommendations and more.
Works with STLT public health departments and other partners to: identify public health law priorities and research laws that impact the public's health; analyze public health legal preparedness; conduct comparative analyses across jurisdictions; prepare guides, articles, reports, and toolkits; and develop and disseminate public health law curricula.
Law is a tool for protecting and promoting the health of the public. Law has been critical in attaining public health goals, serving as a foundation for governmental public health activities. Many of public health’s greatest successes, including high childhood immunization rates, improved motor vehicle safety, safer workplaces and reduced tooth decay, have relied heavily on law. Further, law is playing an increasingly important role in addressing emerging public health threats such as childhood obesity, healthcare-associated infections, motor vehicle injuries and prescription drug overdoses.
Free, weekly digest featuring scientific articles to enhance awareness of scientific knowledge.
CDC Science Clips is an online bibliographic digest featuring scientific articles and publications that are shared with the public health community each week, to enhance awareness of emerging scientific knowledge. For questions about CDC peer-reviewed publications, contact the CDC Library at cdclibrary@cdc.gov or (404) 639-1717.
Provides a full range of information services and products in support of public health research, policy and action. Although license restrictions limit online subscription access to CDC-affiliated users, several resources are available to support state and local health providers, including the Library Catalog.
The Stephen B. Thacker CDC Library (CDC Library) mission is to advance science, public health and safety through information. The library provides a full range of information services and products in support of public health research, policy and action. Through the headquarters library in Atlanta and its four branches, CDC Library serves CDC employees across the nation as well as those located internationally.
Resources for Researchers
The Patient-Centered Outcomes Research Institute (PCORI) is a nonprofit, nongovernmental organization located in Washington, DC. Congress authorized the establishment of PCORI in the Patient Protection and Affordable Care Act of 2010.
Our mandate is to improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers, insurers, and policy makers make informed health decisions. Specifically, we fund comparative clinical effectiveness research, or CER, as well as support work that will improve the methods used to conduct such studies.
Overview of the concepts and conduct of community-engaged research.
Discusses the unique principles that guide the research and the relationships between researchers and the community; partnership development, cooperation and negotiation, collaboration with community partners and a commitment to addressing local health issues.
Central Ohio data on employment, housing, income, population, public assistance, transportation and more.
DataSource includes tools to map, graph and visualize data in many ways. View and compare data for specific geographic areas, including counties, cities and zip codes in Franklin County, Ohio.
HealthLandscape is an interactive web-based mapping tool that allows health professionals, policy makers, academic researchers and planners to combine, analyze and display information in ways that promote better understanding of health and the forces that affect it.
The tool brings together various sources of health, socio-economic and environmental information in a convenient, central location to help answer questions about and improve health and health care. HealthLandscape can be used to create maps from publicly available data sets including regional criminal justice, education, healthcare and demographic data, allowing users to discover community characteristics and share information with health professionals, policy makers and legislators.
OASIS offers a variety of tools for data collection.
OASIS lets you search 20 years of Interact for Health surveys. See the question wording, summary results and details about data collection.
Research Ethics Training Curriculum has been developed for an international audience of researchers and Research Ethics Committee members who design and implement research that includes human participants or conduct reviews of the ethical aspects of research.
Human research ethics rest on three basic principles: respect, beneficence and justice. These principles are the foundation of all regulations or guidelines governing research ethics and transcend all geographic, cultural, economic, legal and political boundaries.
Although these principles are universal, there are few tools available to help researchers learn about the development and philosophy of ethics or find out how ethical principles can be applied in a practical way.
A theoretical framework and practical guide for engaging partners, principles, concepts and models.
Non-profit organization promoting community/academic parternships; provides educational resources discussing community-based participatory research.
Established in 1997, Community-Campus Partnerships for Health (CCPH) is a nonprofit membership organization that promotes health equity and social justice through partnerships between communities and academic institutions. We view health broadly as physical, mental, emotional, social and spiritual well-being and emphasize partnership approaches to health that focus on changing the conditions and environments in which people live, work, study, pray and play.
Provides information on essential skills for building healthy communities.
The Community Tool Box is a free, online resource for those working to build healthier communities and bring about social change. Our mission is to promote community health and development by connecting people, ideas and resources.